Being realistic about healthcare and treatment expectations

I have lived with pain most of my life. Prior to the age of 30, when I developed dystonia, it was mainly from sports injuries. Pain from dystonia, a neurological movement...

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Thoughts about suffering to help break through pain and misery

Most things in life don’t always go as expected. None of us ever truly prepares for a hardship that throws our life off course. Even in the case of...

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What I have learned from decades of pain and dystonia

As I reflect on my 23 years (as of 2024) living with dystonia and pain and other symptoms that changed my life in many ways, I want to share...

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How we can hold space for ourselves to reduce pain

In this article I am going to talk about how we can hold space for ourselves for the benefit of being more at peace and more at ease. This...

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Key Nutritional Advice for Diabetics Looking to Eat Healthier

Living with a chronic condition can be very difficult. Sometimes, you are dealing with physical pain or discomfort. Then, there are the tests and appointments. You also have to...

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Drink ideas for pain, inflammation, and weight loss

People often ask what I eat since nutrition is very important to me, especially as it relates to helping control pain and other symptoms of dystonia. I also used...

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Releasing emotional pain about the past to find peace

Several years ago, I wrote about the emotional pain of “victim mentality” when faced with a health or other life challenge, because of how dramatically things may have changed...

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Tips for reducing the control that anxiety has on us

If you live with anxiety of any kind, I hope this is of help to you. Anxiety and panic attacks were a big problem for me for a long...

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How I overcame the freeze stress response after an anxious situation

If you suffer with anxiety, you know just how crippling it can be. As horrible as it is, anxiety is actually a normal, instinctive human emotion that everyone experiences...

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Negative thinking is like a self-induced autoimmune disease that can make life miserable

I need to preface this article by saying that I am not equating an autoimmune disease with how we think. What I am saying is that the way we...

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Be kind to your pain. It’s crying for your attention

I have lived with chronic pain from a neurological movement disorder called dystonia for over 20 years. Chronic pain does not follow any rules, and after multiple beatings, we can lose...

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How we can relate more effectively to our pain

If you live with any form of pain, I’m hoping the following information will be of help. Many of us look at pain the wrong way that exacerbates our...

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Cervical Dystonia: A Comprehensive Guide to Learning and Coping

I am honored to share a guest blog by Apurva Zawar, PT, DPT, GCS. She is the founder and owner of BeyondRehab, a digital Neuro-Rehab & Wellness clinic. I...

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They Don’t Know What They Don’t Know: Learning to Manage Judgement and Criticism from Others When Living with a Chronic and Debilitating Condition

In my last blog, I talked about the difficulty being understood by others when living with a chronic health condition and the challenges that come with it. You can...

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“I understand, but I also don’t understand” – A message to everyone about chronic health issues

A few days before a recent family gathering, I had a flare up in pain and other symptoms of dystonia that prevented me from attending. One of my relatives...

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