How life before and after chronic pain from dystonia changed my entire world
For most of my 21 years with chronic pain and other symptoms from dystonia, a neurological movement disorder, I viewed it as a curse; an evil intruder that ruined...
Nature versus nurture when it comes to chronic pain and illness
If you live with a health condition, as I do with a chronic movement disorder called dystonia which is accompanied by pain, I have to be very careful how...
Turning suffering upside down
Having lived for over 20 years with chronic pain and persistent involuntary muscle contractions from dystonia, a neurological movement disorder, I have experienced a lot of suffering. If you...
Trying to put pain into perspective
This year marks the 21st anniversary when devastating chronic pain from dystonia took over my life. Within months after my first symptoms, I went from a very active, social,...
Tips for becoming more self-empowered when living with a chronic health condition
When we are faced with a limiting health issue where performing “simple” everyday activities becomes a challenge, our self-confidence and self-worth can dwindle. This can happen with any health...
Listening to our body to help reduce pain and anguish
Having lived over 20 years with chronic pain from dystonia (a neurological movement disorder) in order to best manage my condition, I have to be very mindful of the...
Striving to find balance when in pain and everything feels off balance
I am always striving to find balance in my life, as I know most people are. Because my neck is off-center from a neurological movement disorder called dystonia, it...
How to choose better for ourselves when we are suffering
If you have dystonia and chronic pain like I do, or one of many other thousands of health conditions, or just dealing with some tough life situations, you are...
Try as we may, we can’t hide from our pain forever
Human beings are wired to run away from things that are painful and difficult. I sure as heck did the first 5 years of my dystonia diagnosis. It often...
What a spider (and all of nature) taught me about resilience and adapting to adversity and pain
I have lived with chronic pain from dystonia, a neurological movement disorder, for 20 years. When it first began in 2001, it completely changed my life. I had to...
Stress is like a clogged drain – Tips for managing our emotional plumbing
I think everybody would agree that stress is a challenge in their lives. Personally, I think we should take on the belief that no stress exists and that it...
Are you turning your gizmo into a gremlin? Understanding and managing anxiety
When I think of anxiety, I think of the movie, Gremlins (1984). For those of you who have seen this movie, you know that feeding a gremlin after midnight...
The Dystonia Diagnosis and Prognosis
“You have dystonia” are three words that can be very confusing and frightening. Receiving the news that you have any chronic condition can bring out a lot of emotions....
