I want you to picture what it feels like to hold your breath with your mouth closed and your fingers holding your nose so you can’t breathe any air....
I have lived with a neurological movement disorder called dystonia for 20 years. For the first 5 or so years, I looked at it as an evil intruder that...
Uncertain times may be the understatement of the year so far. When the news of COVID-19 (coronavirus) caught our attention, many of us were frozen in disbelief and bewilderment....
I was recently interviewed by Matthieu Creson for AMADYS, the French Dystonia Association, to share my experience living with dystonia for nearly 20 years, as well as my thoughts...
People often tell me how upbeat and positive I am, despite living with pain from dystonia all day, every day for the last 20 years. I would say this...
The other day I was speaking with a client of mine who suffers with a chronic health condition called dystonia, which is accompanied by chronic pain. I also live...
This is a post by a guest blogger who describes an experience many of us can relate to when it comes to the care we receive from health professionals. by...
Human beings are visual creatures, so we often associate how someone feels based on how they look and act. Sadly, this is very short sighted. Many people live with...
Hope is a simple word that can mean so much to anyone going through a difficult time. It can mean the difference between giving up and hanging on. It...
It is coming close to the 20-year anniversary when my life completely changed. This is when chronic pain from dystonia took over. It was devastating to say the least....
Having lived with chronic pain from dystonia for almost 20 years, I spent most of that time focused on treating the physical symptoms. This has been very important and...
I was recently talking with a client who suffers with dystonia and chronic pain like I do. She wanted to know how to work through her pain, especially those...
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