Preparing for doctor visits

It is so important to be prepared for doctor visits. This can’t be stressed enough. Dystonia is a complex disorder and our symptoms are very specific to us, making...

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How do we find ourselves? Get lost!

In the summer of 2001, I developed a neurological movement disorder called Cervical Dystonia (CD). In the very beginning, I saw chiropractors, medical doctors, massage therapists, physical therapists, psychologists,...

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What does dystonia feel like?

Unless you live with dystonia, it is very hard to understand how it physically feels, let alone the mental and emotional challenges that come with it. For some people,...

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The Dystonia Diagnosis and Prognosis

“You have dystonia” are three words that can be very confusing and frightening. Receiving the news that you have any chronic condition can bring out a lot of emotions....

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Be your best health advocate

Living well with dystonia and other chronic conditions requires that we be disciplined in taking good care of ourselves. Some people rely solely on their doctors for care. Unfortunately,...

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How social media may fuel depression

Have you ever played the social media comparison game? If you have, you are not alone. Most people at one time or another have gotten caught up in what...

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Dystonia and Stress Management

As we all know, stress and dystonia do not mix. It can have a negative impact on our symptoms, such as increased spasms, twisting, pulling, pain, anxiety, headaches, physical...

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The hidden opportunities within our ‘problems’

Life is filled with endless opportunities. Sometimes the opportunities, or silver lining, are hard to see when we have problems with our health, finances, family, or career, but they...

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Asking for help when living with dystonia

I have lived with dystonia for over 15 years. For more than half of those years, I had a hard time asking for help. My ego stood in the...

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Post Traumatic Growth

We often hear the term Post Traumatic Stress Disorder (PTSD), a mental health condition triggered by a traumatic event. PTSD is commonly used in context of military personnel returning...

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Dystonia and the opinion of others

While I truly believe that people are well intended, their opinions and comments often miss the mark when it comes to what we experience living with dystonia. Some of...

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Dystonia and the Highly Sensitive Person

I believe that people with dystonia and other disorders have very similar personality traits. One such trait, or rather, set of personality traits I find common among those with...

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