Overcoming victim mentality

When the pain and muscles contractions from dystonia were at their worst for me (see below), it significantly limited what I could do. For years I characterized dystonia as...

Read More

Tips for better sleep

Ahhh… sleep!! It feels so good when we get it. Unfortunately, quality sleep is something that eludes many of us. It seems that more and more of us sleep...

Read More

After the diagnosis/Self harming thoughts

After being diagnosed with dystonia and learning it is not a temporary problem (or if you have lived with it for years and are feeling fed up), experiencing fear,...

Read More

The power of positive thoughts on our health

Most people have probably heard the saying, “change your thoughts, change your life.” There is great truth to this because how we think can significantly impact our mental and...

Read More

Preparing for doctor visits

It is so important to be prepared for doctor visits. This can’t be stressed enough. Dystonia is a complex disorder and our symptoms are very specific to us, making...

Read More

How do we find ourselves? Get lost!

In the summer of 2001, I developed a neurological movement disorder called Cervical Dystonia (CD). In the very beginning, I saw chiropractors, medical doctors, massage therapists, physical therapists, psychologists,...

Read More

What does dystonia feel like?

Unless you live with dystonia, it is very hard to understand how it physically feels, let alone the mental and emotional challenges that come with it. For some people,...

Read More

The Dystonia Diagnosis and Prognosis

“You have dystonia” are three words that can be very confusing and frightening. Receiving the news that you have any chronic condition can bring out a lot of emotions....

Read More

The hidden opportunities within our ‘problems’

Life is filled with endless opportunities. Sometimes the opportunities, or silver lining, are hard to see when we have problems with our health, finances, family, or career, but they...

Read More

Asking for help when living with dystonia

I have lived with dystonia for over 15 years. For more than half of those years, I had a hard time asking for help. My ego stood in the...

Read More

Post Traumatic Growth

We often hear the term Post Traumatic Stress Disorder (PTSD), a mental health condition triggered by a traumatic event. PTSD is commonly used in context of military personnel returning...

Read More