After the diagnosis/Self harming thoughts
After being diagnosed with dystonia and learning it is not a temporary problem (or if you have lived with it for years and are feeling fed up), experiencing fear,...
Drink up for pain, inflammation, and weight loss!
People often ask what I eat since nutrition is very important to me, especially as it relates to helping control pain and other symptoms of dystonia. I also used...
From severe chronic pain and morbid obesity to a joyful bike rider!
When you look at the picture below, you see a regular guy riding a bicycle; and that would be correct. I am pretty much just a regular guy doing...
The power of positive thoughts on our health
Most people have probably heard the saying, “change your thoughts, change your life.” There is great truth to this because how we think can significantly impact our mental and...
Never give up!
I recently found this obese picture of me from 10 years ago with my nephew. I then recreated it last week to see a comparison. My nephew grew and...
What really is a dystonic storm?
Edited excerpt from the book: Diagnosis Dystonia: Navigating the Journey. Special thanks to contributing author, Ruth Curtis, for research and personal accounts from her experience with dystonic storms. This should actually...
Preparing for doctor visits
It is so important to be prepared for doctor visits. This can’t be stressed enough. Dystonia is a complex disorder and our symptoms are very specific to us, making...
How do we find ourselves? Get lost!
In the summer of 2001, I developed a neurological movement disorder called Cervical Dystonia (CD). In the very beginning, I saw chiropractors, medical doctors, massage therapists, physical therapists, psychologists,...What does dystonia feel like?
Unless you live with dystonia, it is very hard to understand how it physically feels, let alone the mental and emotional challenges that come with it. For some people,...
How social media may fuel depression
Have you ever played the social media comparison game? If you have, you are not alone. Most people at one time or another have gotten caught up in what...Dystonia and Stress Management
As we all know, stress and dystonia do not mix. It can have a negative impact on our symptoms, such as increased spasms, twisting, pulling, pain, anxiety, headaches, physical...
The hidden opportunities within our ‘problems’
Life is filled with endless opportunities. Sometimes the opportunities, or silver lining, are hard to see when we have problems with our health, finances, family, or career, but they...
Asking for help when living with dystonia
I have lived with dystonia for over 15 years. For more than half of those years, I had a hard time asking for help. My ego stood in the...
