What does dystonia feel like?
Unless you live with dystonia, it is very hard to understand how it physically feels, let alone the mental and emotional challenges that come with it. For some people,...
The Dystonia Diagnosis and Prognosis
“You have dystonia” are three words that can be very confusing and frightening. Receiving the news that you have any chronic condition can bring out a lot of emotions....
Be your best health advocate
Living well with dystonia and other chronic conditions requires that we be disciplined in taking good care of ourselves. Some people rely solely on their doctors for care. Unfortunately,...
The hidden opportunities within our ‘problems’
Life is filled with endless opportunities. Sometimes the opportunities, or silver lining, are hard to see when we have problems with our health, finances, family, or career, but they...
Asking for help when living with dystonia
I have lived with dystonia for over 15 years. For more than half of those years, I had a hard time asking for help. My ego stood in the...
