After the diagnosis/Self harming thoughts

After being diagnosed with dystonia and learning it is not a temporary problem (or if you have lived with it for years and are feeling fed up), experiencing fear,...

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Drink up for pain, inflammation, and weight loss!

People often ask what I eat since nutrition is very important to me, especially as it relates to helping control pain and other symptoms of dystonia. I also used...

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Our mind: As powerful as any drug

Did you know that we have chemicals in the brain as powerful as drugs for pain, depression, anxiety, and other conditions? Among them are neurotransmitters called endorphins, serotonin, oxytocin,...

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From severe chronic pain and morbid obesity to a joyful bike rider!

When you look at the picture below, you see a regular guy riding a bicycle; and that would be correct. I am pretty much just a regular guy doing...

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The power of positive thoughts on our health

Most people have probably heard the saying, “change your thoughts, change your life.” There is great truth to this because how we think can significantly impact our mental and...

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Never give up!

I recently found this obese picture of me from 10 years ago with my nephew. I then recreated it last week to see a comparison. My nephew grew and...

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Patient Assistance Programs for Botox, Xeomin, Dysport, and Myobloc

This is just a brief entry to share the various programs in place to help people pay for their botulinum neurotoxin injections (Botox, Xeomin, Dysport, Myobloc). These programs help...

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You can’t fix dystonia with a cast

This title is a relatively poor attempt at a creative way to illustrate how so many people confuse dystonia with temporary ailments like the flu, other short-term health issues,...

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2016 WEGO Health Activist Awards

up to 90% offfake gold watchescoque telephone parisiluminador elfhow to clean clear phone case – Recognize patient influencers who have become leaders among leaders – Connect patient leaders to...

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Self care tools for relieving pain, stress, & muscle spasms

The products in this blog are for informational purposes only. Please consult a physician before using any of these products. The reader accepts full responsibility for the use of...

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What really is a dystonic storm?

Edited excerpt from the book: Diagnosis Dystonia: Navigating the Journey. Special thanks to contributing author, Ruth Curtis, for research and personal accounts from her experience with dystonic storms. This should actually...

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Dystonia blogs from around the world

Thanks to all the people from around the world for blogging and doing podcasts and videos about life with dystonia from which we can all learn! This is not...

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Preparing for doctor visits

It is so important to be prepared for doctor visits. This can’t be stressed enough. Dystonia is a complex disorder and our symptoms are very specific to us, making...

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How do we find ourselves? Get lost!

In the summer of 2001, I developed a neurological movement disorder called Cervical Dystonia (CD). In the very beginning, I saw chiropractors, medical doctors, massage therapists, physical therapists, psychologists,...

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What does dystonia feel like?

Unless you live with dystonia, it is very hard to understand how it physically feels, let alone the mental and emotional challenges that come with it. For some people,...

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