Be careful about being too hard on yourself if you live with a health condition that already kicks your ass
Dystonia and chronic pain, as well as many other health conditions, remind me of bullies that pick on kids in the schoolyard every day. Like the bully, dystonia and...
After the diagnosis/Self harming thoughts
After being diagnosed with dystonia, or any other chronic health condition, and learning it is not a temporary problem (or if you have lived with it for years and...
A tool for practicing gratitude
Many of us recently celebrated Thanksgiving, a time to reflect upon things for which we are thankful. It is a time to really focus on gratitude, which got me...
Interview – Managing the physical and emotional aspects of dystonia and pain
I was recently interviewed by Matthieu Creson for AMADYS, the French Dystonia Association, to share my experience living with dystonia for nearly 20 years, as well as my thoughts...
Justice for patients?
This is a post by a guest blogger who describes an experience many of us can relate to when it comes to the care we receive from health professionals. by...
Finding peace in the midst of pain
I live with chronic, persistent pain from a neurological movement disorder called dystonia, which I have had for nearly 20 years. Prior to developing it, I experienced pain throughout my...
The power of hope when faced with pain and adversity
Hope is a simple word that can mean so much to anyone going through a difficult time. It can mean the difference between giving up and hanging on. It...
Visualization and other tools to help us work through pain
I was recently talking with a client who suffers with dystonia and chronic pain like I do. She wanted to know how to work through her pain, especially those...
Learning to be okay with what we view as not okay
When I developed dystonia in 2001 at the age of 30, my world completely changed. I went from a private business owner, athlete, a graduate student pursing a master’s...
Neuro-Soothe pain relieving lotion – product review
As many of you know, I live with chronic pain from a neurological movement disorder called dystonia. In my book, blogs, and articles, I talk about many tools for...
Being realistic about healthcare expectations
I have lived with pain most of my life. Prior to the age of 30, when I developed dystonia, it was mainly from sports injuries. Pain from dystonia, a...
Perception is reality. Is yours accurate as it relates to your pain?
I wrote a blog not too long ago about being honest about our pain and suffering, be it emotional or physical. It was called, If you’re in pain, don’t...
Asking for help is good for us and also helps others
I have lived with chronic pain from dystonia, a neurological movement disorder, for almost 20 years. For more than half of those years, I had a hard time asking for...
