Preparing for doctor visits
It is so important to be prepared for doctor visits. This can’t be stressed enough. Dystonia is a complex disorder and our symptoms are very specific to us, making...
How do we find ourselves? Get lost!
In the summer of 2001, I developed a neurological movement disorder called Cervical Dystonia (CD). In the very beginning, I saw chiropractors, medical doctors, massage therapists, physical therapists, psychologists,...
The Dystonia Diagnosis and Prognosis
“You have dystonia” are three words that can be very confusing and frightening. Receiving the news that you have any chronic condition can bring out a lot of emotions....
Asking for help when living with dystonia
I have lived with dystonia for over 15 years. For more than half of those years, I had a hard time asking for help. My ego stood in the...
