What I have learned from decades of pain and dystonia

As I reflect on my 23 years (as of 2024) living with dystonia and pain and other symptoms that changed my life in many ways, I want to share...

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Be kind to your pain. It’s crying for your attention

I have lived with chronic pain from a neurological movement disorder called dystonia for over 20 years. Chronic pain does not follow any rules, and after multiple beatings, we can lose...

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How photography helps take my mind off my pain from dystonia

I have lived with dystonia (a neurological movement disorder) and chronic pain for over 20 years. The very active life prior to dystonia is night and day compared to...

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Managing an overly stimulating environment to protect our health

The other day I read a post in a dystonia support group that is similar to something I see and hear very often. I’m sure you have as well,...

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Chronic Pain Doesn’t Need to Take Over Your Life

Many Americans suffer from chronic pain. A study by doctors from Massachusetts reveals that 50.2 million adults experience it on a daily basis. Their pain often appears in the back, hips,...

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The power of our inner dialogue on our health

I believe very strongly in the power of thoughts and words as it relates to my health. I say this because I have lived with a painful chronic neurological...

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Interview – Managing the physical and emotional aspects of dystonia and pain

I was recently interviewed by Matthieu Creson for AMADYS, the French Dystonia Association, to share my experience living with dystonia for nearly 20 years, as well as my thoughts...

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