What does dystonia feel like?

Unless you live with dystonia, it is very hard to understand how it physically feels, let alone the mental and emotional challenges that come with it. For some people,...

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Be your best health advocate

Living well with dystonia and other chronic conditions requires that we be disciplined in taking good care of ourselves. Some people rely solely on their doctors for care. Unfortunately,...

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Asking for help when living with dystonia

I have lived with dystonia for over 15 years. For more than half of those years, I had a hard time asking for help. My ego stood in the...

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