Patient Assistance Programs for Botox, Xeomin, Dysport, and Myobloc

September 29, 2016
This is just a brief entry to share the various programs in place to help people pay for their botulinum neurotoxin injections (Botox, Xeomin, Dysport, Myobloc). These programs help...

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You can’t fix dystonia with a cast

September 16, 2016
This title is a relatively poor attempt at a creative way to illustrate how so many people confuse dystonia with temporary ailments like the flu, other short-term health issues,...

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2016 WEGO Health Activist Awards

September 12, 2016
up to 90% offfake gold watchescoque telephone parisiluminador elfhow to clean clear phone case – Recognize patient influencers who have become leaders among leaders – Connect patient leaders to...

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Self care tools for relieving pain, stress, & muscle spasms

September 1, 2016
The products in this blog are for informational purposes only. Please consult a physician before using any of these products. The reader accepts full responsibility for the use of...

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What really is a dystonic storm?

August 19, 2016
Edited excerpt from the book: Diagnosis Dystonia: Navigating the Journey. Special thanks to contributing author, Ruth Curtis, for research and personal accounts from her experience with dystonic storms. This should actually...

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Dystonia blogs from around the world

August 7, 2016
Thanks to all the people from around the world for blogging and doing podcasts and videos about life with dystonia from which we can all learn! This is not...

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Preparing for doctor visits

July 25, 2016
It is so important to be prepared for doctor visits. This can’t be stressed enough. Dystonia is a complex disorder and our symptoms are very specific to us, making...

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How do we find ourselves? Get lost!

July 16, 2016
In the summer of 2001, I developed a neurological movement disorder called Cervical Dystonia (CD). In the very beginning, I saw chiropractors, medical doctors, massage therapists, physical therapists, psychologists,...

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What does dystonia feel like?

July 16, 2016
Unless you live with dystonia, it is very hard to understand how it physically feels, let alone the mental and emotional challenges that come with it. For some people,...

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The Dystonia Diagnosis and Prognosis

July 16, 2016
“You have dystonia” are three words that can be very confusing and frightening. Receiving the news that you have any chronic condition can bring out a lot of emotions....

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Be your best health advocate

July 16, 2016
Living well with dystonia and other chronic conditions requires that we be disciplined in taking good care of ourselves. Some people rely solely on their doctors for care. Unfortunately,...

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How social media may fuel depression

July 16, 2016
Have you ever played the social media comparison game? If you have, you are not alone. Most people at one time or another have gotten caught up in what...

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Dystonia and Stress Management

July 16, 2016
As we all know, stress and dystonia do not mix. It can have a negative impact on our symptoms, such as increased spasms, twisting, pulling, pain, anxiety, headaches, physical...

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The hidden opportunities within our ‘problems’

July 16, 2016
Life is filled with endless opportunities. Sometimes the opportunities, or silver lining, are hard to see when we have problems with our health, finances, family, or career, but they...

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Asking for help when living with dystonia

July 16, 2016
I have lived with dystonia for over 15 years. For more than half of those years, I had a hard time asking for help. My ego stood in the...

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